I’m walking with my team- Dylan’s Super Squad for our 6th year at the Walk for Wishes to support all kids like me struggling with illnesses.
I was born with Chronic Kidney Disease and Bladder Dysfunction in 2016 with Grade 5 Vesicoureteral reflux. I was diagnosed with hydronephrosis of the kidneys while in utero. Once born I was unable to urinate on my own and the doctors told my parents that my kidneys did not develop correctly and they do not know why. I spent the first 25 days of my life in the NICU and the first 18 months needing to be catharized every few hours. At 18 months I had my first surgery which re-implanted my 4 (yes 4) ureters into my bladder. This has allowed me to now be able to pee without the aid of a catheter. The surgery was successful with correcting my bladder dysfunction, however, it was not successful in helping the vesicoureteral reflux or hydronephrosis which puts added strain on my already compromised kidneys. Fortunately, my kidney function is remaining stable and dropping at a much slower rate than any doctor ever imagined.
I see my pediatrician, nephrologist and urologist routinely. I also have routine lab work and follow up studies. My doctors are happy with my progress so far. I am putting up a strong fight!
My family and community supports me every day. Unfortunately, things may not always be this stable and could change at any time for me. Others have not had it as fortunate as I have so far. I don’t think any kid should suffer from illness and that is why the Make*A*Wish foundation is so close to my heart.
Wishes through Make*A*Wish helps kids forget about their battles, even if just for a short moment and enjoy being a kid. I hope my fundraising efforts will help kids have a break from their battle and be able to be a kid even for just a brief period of time. Wishes can do amazing things to the spirits of these kids. Any donation that can help a child and a child’s family battling illnesses would mean so much.
I cannot thank my supporters enough! Thank you in advanced for your donation!
Thank you,
Dylan Ramey/Dylan’s Super Squad